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Welcome to our January Newsletter!
express News in Brief
Happy New Year! Wishing you peace, love & autism understanding.
Hope you had a lovely Christmas break and that back to school/college goes well. We had an extremely busy December raising funds and attending events so a break was much needed! Thank you to everyone who came along and supported us.
The start of the year is looking just as busy with lots planned for the year ahead. We find out this month if we have been successful with the Aviva funding so keep everything crossed. In the current financial climate grant applications are becoming even more competitive. We spend much of our time fundraising to cover our increasing costs so if you have some expertise and time to spare we would love to hear from you!
Please do share our newsletter with anyone else who may be interested.
With the Holiday Booking Season fast approaching, please could we ask as many people as possible to sign up to easyfundraising. It doesn't cost you anything and you can raise money for express when you shop online. You can also donate to express on our local giving page.
Express is run by parent/carer volunteers. We have an excellent dedicated small team of volunteers but we really do need more support. We do not receive funding. We rely on fundraising and donations to help cover our increasing costs. Please do consider fundraising for us, however big or small it all helps!
Some ideas ... Coffee mornings, cake sales, quiz night in your local, good as new sale or pamper evening. Please also nominate us in your local supermarket schemes or look out for community funds we can apply for. We really need your help!
We are still working on providing even more evidence that there is a need for services! We really do need all parent/carers to take a few minutes to complete our survey
Your comments are always welcome - please click here to contact us. We look forward to hearing from you. For further information on our upcoming events you can visitwww.expresscic.org.uk www.facebook.com/expresscic & for other events locally www.afclocaloffer.org.uk
best wishes & Happy New Year!
Annette & Tracey
express Support Groups
If you haven't yet been to one of our parent/carer support groups, please do come along. We are all very friendly and these groups are run by and for you. These groups are for whether you are currently going through diagnosis, have just received a diagnosis or have valuable experience to share. We run both daytime and evening groups.
Bi monthly (dates via newsletter) at the Rose Theatre
Mum's Group 1st Thursday of the month (term time) at the Waggon & Horses 7:30-9:30pm
NEXT: JAN 5th
2nd Tuesday of the month at the Express Offices 9:00-11:00am
NEXT: JAN 10th
Dad's Group 2nd Wednesday of the month at Waggon & Horses 7:30-9:30pm
NEXT: JAN 11th
TYA 3rd Monday of the month at the Express Offices 7:30-9:00pm
NEXT: JAN 16th
Last Tuesday of the month (term time) at Moor Lane Centre 1:00-2:30pm
NEXT: JAN 31st
Every Tuesday EHCP 1:1 Support by Appt. - Express Offices 9:00-12:00pm Contact firstname.lastname@example.org or email@example.com (to arrange appt.)
In a heart-warming letter to his late father, author John Williams muses over what it would have been like if his autistic son - someone who has taught him to view life in an entirely new way - had met his grandfather.
Dr Judith Gould, Lead Consultant at the Lorna Wing Centre for Autism was interviewed on BBC Woman’s Hour about late diagnoses and misdiagnosis of autism in women and girls. Dr Gould spoke with Jane who told her story of receiving a diagnosis of Asperger syndrome at 45 years old. You can listen to the interview again on The BBC website (27m 13s in).
Being in a Bubble
A personal insight into living on the Autism Spectrum. Written, presented, produced and edited by Joe Fautley.
Why should Autistic people have a voice?
Created by Rosalind Hardy and Joe Fautley for The National Autistic Society.
Express Mum's Group
The group runs from the Waggon and Horses in Surbiton 7.30-9.30pm on the first Thursday of the month (next group 5th Jan). Come along, say hello and meet some other Mums. To register your interest, please email firstname.lastname@example.org
Express Dad's Group
The group runs from the Waggon and Horses in Surbiton 7.30-9.30pm on the second Wednesday of the month (next group 11th Jan). Come along, say hello and meet some other Dads. To register your interest, please email email@example.com
Express Girls Group
Girls Group is a weekly meet up opportunity for girls on the autism spectrum aged 8-11. The group is run by Dramatherapist, Louisa Webster, who uses her creative skills and experience of working with young people to create fun, creative and inclusive sessions for the girls who join. The sessions run on a Tuesday, term time only, from 5.15pm-6.15pm at Express CIC in Tolworth (just off A3). We ask for group members to commit to at least a term of attendance.
For more information and to book please contact: firstname.lastname@example.org
Personal Independence Payment and other benefits at 16 Information for parents of disabled children in England, Scotland and Wales
Interesting Articles :
How Google Street Map Has Given One Non Verbal Autistic Boy a voice
Autism: 'hidden pool' of undiagnosed mothers with condition emerging
Because of You: A Letter to My Autism
STRATEGIES FOR PDA (PATHOLOGICAL DEMAND AVOIDANCE)
Catatonia and catatonia-type breakdown in autism
'Please offer me a seat' Tube badges rolled out on TfL
Loneliness among young autistic people, and why this can go un-noticed
I hate that a child has to be at high risk of suicide before we can help
Autism And Anxiety Symptoms: How They Differ; New Test Helps Identify Symptoms In Children
If you come across any interesting articles you'd like us to share in our newsletter next month please do email them to us. Also feel free to share on our facebook page.
Parent Carer Needs Assessments
Parent carers of children under 18 years of age have a stand-alone right to assessments and services under the Children’s and Families Act 2014. This is called a Parent Carer Needs Assessment (PCNA).
Parent Carer Needs Assessment forms are now available on AFC Local Offer website.
We need your experiences to help with Ambitious about Autism's upcoming campaign looking at the impact of the school system when it fails children and young people with autism. A big focus will be on exclusions but they have also been doing some new research on appeals and tribunals.
They will be launching soon but the campaign itself will run for 3 years as part of a wider campaign called Every Child which will be a partnership between Ambitious about Autism and the National Autistic Society. What Ambitious are looking for at present are some good case studies and they have approached Express so we would like to invite you to a specific parent group at our offices to share your experiences in a secure environment. We will have Justin Cooke coming along from Ambitious about Autism who will be able to talk more about the campaign and how your experiences can help shape the findings.
From Ambitious about Autism:
You can change how education works for children & young people with autism.
At Ambitious about Autism we are passionate about making a difference to the children and young people with autism that attend our schools and colleges. We also want to improve things for every child and young person with autism in England.
That’s why we do policy work. Policy work and campaigning allows us to make a difference to all children and young people with autism by influencing national policy, organisation’s practice and individual’s attitudes and behaviours.
We will shortly be launching a campaign looking at the impact of the school system when it fails children and young people with autism. This will form part of a wider joint Every Child campaign, a partnership between Ambitious about Autism and National Autistic Society.
And you can make a difference by telling us your families story:
Real stories have more impact that any statistics we can offer decision makers, and they shape the way we work as an organisation. If you are happy to talk to our team about particular circumstances that made your life better, that challenged you or caused you stress – we’ll be grateful. We care about your family so we’ll treat your story with respect, and we’ll only use it in ways you feel comfortable with.
Thank you for your support,
Please register your interest by emailing us at email@example.com and we will be in contact to arrange a date. We really hope as many of you as possible will come along and share your experiences.
Take a look at our new video - An Introduction to Express CIC
Thank you to John Williams who made this lovely video for us.
We are delighted to host Makaton courses run by Makaton Trainer Fouad Abbad - see details below
SEND FAMILY VOICES
Schedule of events now updated including upcoming open meetings.
Did you know that whenever you buy anything online - from your weekly shop to your annual holiday - you could be raising a free donation for Express?
There are nearly 3,000 retailers on board ready to make a donation, including the holiday companies above as well as Amazon, John Lewis, Aviva, thetrainline and Sainsbury's – it doesn't cost you a penny extra!
It's really simple, all you have to do is:
Head to http://www.easyfundraising.org.uk/causes/expresssurbitoncic/ and sign up for free.
Every time you shop online, go to easyfundraising first, pick the retailer you want and start shopping.
After you’ve checked out, that retailer will make a donation to your good cause for no extra cost whatsoever!
There are no catches or hidden charges and Express will be really grateful for your donations.
Thank you for your support.
Express CIC - 'creating a hub in the heart of the community, supporting young people with autism and their families, a place for everyone'
Reg. no. 8202424
Copyright © 2016 Express CIC, All rights reserved.
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